Thursday 29 June 2023

Such a broken piece I cannot fix

What do I tell myself 
I can see the room 
I am sat waiting to go in 



What are we even here for anyway
Fucks sake it’s just so little time in the grand scheme of it all


You stand there in a kitchen having what feels like such a chilled out irrelevant conversation and then bam it’s the last you ever had

I can’t even tell you how I should feel
Closest relative I’ve ever lost
If I’m really honest
A father in law is like a second Dad
When my Dad fell Ill it’s what gave me comfort
He was my “second” Dad

I sit here and I feel gutted 
And I still feel numb 
6months on
From the heightened emotions of the calls and the waiting 
The calls from hospital with the updates
Phones in lessons as I waited for a text
Updates of good and bad and oxygen levels
From nowhere
All the time thinking how the fuck is this even happening?


Daylight isnt the same
Holidays
We used to arrive in a place as a couple and call him 
Tell him about the camper or the weather or journey 
Any concerns on the vehicle or direction 
We got abroad in April and I wanted us to call him 
Tell him about the flight or the wait at passport control 
Hear his annoyance at the system but also give us that support 
See he never had emotional sentiment but everything he did was just that
Some people say I love you
But Roger was helpful and involved 
What we said mattered
He wanted us to know so much 
Information was his fortee

It still doesn’t feel right
Nothing feels complete
Keep looking for the emptiness in our existence 
He left such a gap 
A gap that cannot be filled
We just paint over the cracks hoping no one notices the elephant in the room 
He wasn’t perfect but what he brought is missed
It’s hard to forget such a force of nature 
My wife’s idol 
My father in law
Roger

Sunday 18 June 2023

Mask it till you make it

So the time is upon me 
It’s getting ever nearer and the nerves are becoming unbearable 
I draw on my smile and tell you I’m fine but in reality I want to run and hide 

For this appointment will confirm all of our fears and worries 
It will give detail to this killer army of cells that invaded my body 
That took with it my life and normality 
That dragged me through the woods blindfolded and scared 
Screaming without a voice 
Crying without a tear

I am not allowed to say no because it will kill me 
But to experience the unknown is killing me too 
The waiting is the worst 
Sitting there as days just disappear 
Feels like I’m wasting my time 
I can’t do what I want because I’m not well or it’s a risk 
Sleeping is just more turmoil as my thoughts play out horror movies over and over 
People from the low days come back to haunt me 
Then I wake and it’s another day with C
Another day of discomfort and trying to like my new self 
Helping something heal that will one day be reopened 

No one has the words for me
They pull that expression that I hate to see
They say the words that make me want to scream 
For this is not my fault 
This is not being brave or strong 
It came one day and grew and now it’s making everything I’ve ever made, ill 
All those years of looking after my body and eating well and exercising 
Getting active and fit and lifting weights
Beating covid and getting through painful infections and accidents
For what?
For you to just storm in and destroy it all 
Literally throw my life upside down 
Throw the lives of my family and friends into disarray 
Why?
Did I do something wrong ? Is this karma ? Am I a bad person ?

No? Unlucky you say?
Really is that word even worthy of such a devilish thing 
Unlucky is missing the hoop or the net in sport 
Missing a bus
Not this 
Stage 2 destroyer 
I’m still so angry 
Still so sorry for what I will be enduring 
Because it’s not over is it
I mean honestly ? When will it be
Yes eventually the treatment will end but then what 
The waiting 
Waiting and biding time before the next time or praying I hit 5 years to have some sense of relief
But more treatment 
Menopause 
Infertility 
Surgery 
Scars 
So many wounds but those are what you see
For inside 
Inside my heart and my head 
I am a bewildered child again 
Not quite understanding why me 
It just happens doesn’t cut it
Searching for an answer google will never find 
A justification for just some cruel disgusting reality 

This C has taken enough already
Not sure I have enough in me to keep going 
So I pour this out in the hope it helps
Or at least takes some weight from my shoulders 
Throws the thoughts into the universe and waits for a solution 
Until then I will attend my cycles 
Sit there and watch it go in 
Do as I’m told
Because even if I am so sad and gutted by my reality
I was always the child to do as I’m told 
Even if I didn’t understand the reason 
Mask it till you make it as only an ASD female can


Wednesday 7 June 2023

Mr Moo



My mum has always talked about Crispin her GR from when she was young
But I’d never been a dog person because we’d always had cats
They say you are either one or the other 
But after almost 8 years with our pooch I’m both.

I can remember meeting him at our childhood home 
P was with me and she was so happy to see a dog again 
I don’t know why but I felt nervous of his arrival 

God knows why 

Mr moo was my guide for a long time when I was lost 
He was my get out of bed call and I was taken in by his presence 
When I walked him during a difficult year he made me feel ok and safe 
He never pooed in places he shouldn’t with me 
He sat with me on a hill after my ankle gave way and waited whilst in pain I cried 
He wouldn’t let go of a dead rat this one time 
He was running at people in the park with this half eaten rat 

I remember him being trained as a puppy 
And always running at me when I came over 
I told him so much 
He has this look that tells me not only is he listening to every word but that I matter 
What I’m saying matters 

I saw him last weekend 
He was so excited to see me 
He jumped up to me and I was annoyed I was in white 
Why is it I have the stupid thoughts at such good times?
I asked him if he knew about my illness 
His look was deep and almost sympathetic 
I brushed him for hours 
That’s what I did
I got him cute toys treats and brushed out his knots
I used to stand him up to dance with him 
Get him to give me two paws 
And gave him head massages 
This time even a shoulder one 


I never wanted to say good bye to such a friendly dog and absolute anchor to our family 

But my illness is something else we share

Along with some of the best walks I’ve ever had 
He was such a supportive companion
And he gave me such strength at my lowest times 
I am forever grateful to Dystran for being part of our family and to us all a real anchor and rock in some of the hardest years of our lives 

Mr Moo 
I will never forget you
Wish this wasn’t your time 

PS wish I’d been with you in France 🇫🇷 
Those walks we could have gone on