Monday 26 August 2024

Nothing prepares you

Nothing can prepare you for that first session 
Infusion 
Whatever you want to dress it up as 
The reality? It’s chemotherapy 
It’s been selected based on grade, type and stage
It’s a concoction of liquids 
like making potions as a child in the bath; using all your mums expensive Avon selections
But in this case, it’s plain old poison and it’s job is to be syringed directly into my vein and flung about my body, killing all that it sees 
Cancer cells, healthy cells
It’s not picky 
It doesn’t care

My first session was not easy
I’d been alone the night before
Tears down my face as I realised later but at least it happened that in that dark moment in which I was home alone 
Partner soon to be ex out drinking and two cats by my side like security 
That I would only have myself to rely on throughout
That this treatment was going to ruin me but that I needed to keep calm for myself
You have bloods taken several days before to check you are healthy enough to go ahead
As soon as that stuff starts entering you; your body really hasn’t known anything like it

I had a picc line so that meant that my first four infusions known as EC would not damage the veins or cause burns on my skin
No I’m not joking…

So imagine I’m there with all this stuff you read about needing 
Huge bag known as my chemo bag
Full of books and sweets and my iPad you know? Like it’s some day out 
2litre bottle of water ready to chug as that’s important to ensure you pass urine before you leave that day
I choose my chair like you do in the cinema 
Except this is completely different 
No thriller or romcom for me today
My nurse was amazing 
I mean they all were but the first nurse became my rock 
She got me with all my tisms and blank moments she understood
They fit my line and start with fluids and anti sickness and everything else you can imagine as a precaution to my reactions and allergies
Then a hospital staff member arrives with a bag 
Full of the days meds 
We have different colours for different types 
This room seems to fill up quickly each seat is taken 
The enormity of people affected has never really been easy to see
Mine was here
I confirm my name my NHS number and my DOB, it feels surreal that at 36 I was experiencing this
There was never a subject in this
No lessons like swimming or driving 
No way of preparing mentally or emotionally
You want to make a joke but the jokes on me 
You want to run away
You want it to be a sick April fool that went wrong 

But it’s none of these things
It’s attached to this device and this pole on wheels is attached to me
The saving grace is that my nurse gets to stay with me
Four syringes of the Red Devil and four syringes of the one that felt like I was drowning
She talks about everything 
I try and hide my fear but she can see it
It’s a large tube for the syringe and it’s going in 
Weird to see this line hanging out of your arm 
Knowing it’s deeply embedded in a vein leading directly to my heart
Being pumped around with my hearts beat
Slowly at first and calmly it starts entering
My fear of blood seems laughable now
I don’t know where to start with the fears I could now list
Watching this red liquid enter my body 
Unforgettable
Pink box near me incase I react
Incase my body goes into shock at the audacity
How am I someone who was so healthy and happy
Experiencing this 
What the hell is life
Why me?
Why us?
Too many people
All ages
Not picky this C

I did react
Nausea was horrific at home
You sit in your head thinking what the hell is my body going through 
How is this even real
1 of 8 and I never want to go again 
The smell of the ward
Brings back the fear
Was in hospital several days later
All these meds and injections to follow
To be done by yours truly

But we don’t moan 
We don’t complain 
We don’t even react as it’s causing us sickness 
We do cry when alone
That’s what I’d do
I’d hug my body close and apologise under my breath
Apologise that my body let this in
That my body didn’t notice the signs
That this cell was a fake 
But it was too late
This was my path
This is my path
This path never ends
Station stops throughout life

But like they say with childbirth 
You never forget
It never goes away
The staff will stay with me forever
And unlike that child birth
We aren’t gifted with a baby
We are gifted with a bit more time 
And we hope there is no next time 
We spend our life hoping  

Sunday 18 August 2024

Three generations

Three generations 
All under one roof
All living out lives
All avoiding the bumps
The bumps in the roads as they endure life
The bumps in the road that bring along grief
The bumps in the road of mixed up feelings 
Of health outcomes
Of love loss and pain 

Three generations 
It ends with me 
I can’t reproduce or continue this line 
It was never my destiny 
But I think so hard
About those above me 
About the generations that had bad days
And how they continued to breathe
I think about the lives they may have led
And how hard it might have been 
Of losing loved ones young 
Of battling through adversity
Of the constant house changes
The constant school changes
The new girl narrative
The long walks to school
The tough lessons in different times
Being out late and hitchhiking home
To not being allowed out at all
To being evacuated
To living far away from home
To running down that field behind that unfamiliar place
And watching the trains as they passed by
Waving and crying 
Missing and hoping
Life being so unsettling

Three generations 
All under one roof
Each with a story
And each with a book
Each with its hard times
And each with its tough lessons
Each with its loss 
Each with its first love
And some with its last
Grief and pain and despair
But all still here
Never gave up
Kept the fight for life
Brought into the world the next life
The next generation
That ends with me

Strong women 
Never walked from a fight 
Never gave up any battle
Lived and loved life
I will carry the lessons learned
I will stand proud and tall
And although I won’t pass it on 
I will not let it fall
To the waste side 
To be forgotten 
It will forever exist
Through the stories 
The memories
And our hard fought fights for life