Sunday, 6 April 2025

Tightly closed boxes piling as high as the tree

And when your hearts in pieces
And when there’s nothing left
And everything you used to have 
Is filling up the trash 
And when you find yourself silent 
Along comes all the grey
The sadness in our history
Will finally go away
And now I’m thinking of her again
Even though it left me with a stain 
A stain from all those tears
From waiting on your name
To flash up on my phone again 
And make me feel more normal 

For I spent a whole year pining 
And now it feels like a new ordeal 

And now it’s all lay out 
In front of me on the floor
The memories all such pain felt 
All piled high against the wall
The flooding of all these moments 
Fill the rooms with thoughts 
The windows they won’t open 
And the house is getting heavy
It’s such weight on my heart strings 
And such sorrow in my voice
As I watch it all fall away 
In this huge pile at the tip 

The wind will return soon 
And it will blow a gale 
The little bits of paper will all take off and spiral
Within it the ink has written shapes that wrote letters about our love 
All wrapped up tightly as it falls through the night 
And it will finally lose speed and fall to the ground falling to that street where it will never be found 
And one grey Monday night there it is by this hedge
And one person will walk past it 
And the words that were written will never be read 

Saturday, 15 March 2025

Haden hill park

Take me to the park you frequented as a child
Tell me of the games you played, and the first time you grazed your knee
Tell me what you dreamed of and how much you enjoyed life
Tell me about the trees and how this park felt like the whole world

As we walk along the path that you used to walk up on a Sunday afternoon 
Tell me about the tiredness in your legs at this steep hill
At this family tradition of Sunday walks and then Sunday dinner
The dinner bubbling as we got home 
Our stomachs rumbling

As we walk along this lake, and you point out the ducks and tell me of the rat race that once scared you and your mum
That the swamp below used to have this smell and that you can still remember it

As we arrive at this castle, although a once famous household, tell me about how you remember it before the remodel; that it used to be a presence and look stunning every year, that you could imagine the families that would occupy it; and as you got older you would learn about the love story from two very different households

Firework night was always your favourite, the beautifully lit skies were vibrant in lilacs and whites and golds 
Some noises that came from them were screechy but the night just filled you with magic
It felt like you lived in a Disney film 
And that this night still remains deeply important to you

The bonfire nights, and the hot chocolate, to the cricket club and the beers 
To that plastic flooring covered in mud and warm cans of cider
But still the best firework display for miles

As we approach the gates, you tell me of being stuck in here once, that you outstayed the times and you got locked in
That you were never a good climber and struggled to get out
But you were able to drag yourself up and over, banging and bruising your knees in the process
The park wardens house always so quiet and peaceful

The road was opposite a pub that you would go on to work at when you turned 18.
This job would go on to be the making of you 
It gave you spirit and confidence and the potential to believe you could and would achieve higher education
The people you met have never left your memories and although there were some tough experiences and scary times overall it was your safe space
It was also the place that linked to the house in that park, the tunnel underground, the meet up of two people in love 
Creating a love that was forbidden, a lot like the story of Romeo and Juliet 


Now its no longer and although the building has been gone for over 10 years, I still see it when I think back to that road 
I still see the summer nights and football games, and parties,
The karaokes and the music
The regulars and the carefree times
The fun and ease of life was just so real 
That young girl had so much to learn

But now as we make our way to a front door that’s changed and the house no longer in our name
You tell me you loved this place 
That is brings with it such positive happy memories 
That the times just flood in and bring a tear to your eyes
That this was a time in my life I will hold onto forever


Moving on has always been a tough game to play
The unknown always frightened me
The need for expectations to be met and the same old to be stable was always my path
That consistent routine that didn’t change
That inability to be spontaneous a deeply rooted trait

Look at me now
That young girl running up that steep hill in the park of such adventures
She’d never believe me 
Not for a second
That this is the life I am currently living
That all those changes and times happened and that my health did suffer
But whatever the experiences I have had
Whatever the pain I have felt and the loss I have had
I will always be that young curious girl
The girl who felt safe in that park 
The girl that ran fast and with purpose
Who won the race
Who captured moments and saw the beauty in the most random of places
Who felt the flowers grow and the ground below her soften 
The young girl with high hopes and big dreams 

Tuesday, 4 February 2025

Cancer Day Rambles

You know how relentless this all is 
Who gives a fcuk about how frigging much we weigh whilst we do it 
Yes don’t become morbidly obese
Yes don’t affect your health with weight 
But societal pressures can go fuck itself as far as I’m concerned
All this “journey” BS 
This is relentless and changes our psyche in ways only us as individuals will ever really know
We can’t scream or shout about it
It won’t make any difference
It is a disability
I feel disabled by it often and there’s not a thing I can do to stop it 
I can’t just throw in the towel 
I can’t give up
It just rolls on and on like a payday in January
Just heavier and heavier on my heart and soul 

Family are grieving, but it’s not the same as it is for me 
Not one bit 

If I was ever honest enough like I am now, about how hard it really is?
I’d break their hearts
I already feel guilt for it
Like I chose this
Like the buffet option was breast cancer and I put it on my plate
Like I put a bid on it 
The higher the price the worse it became
It took everything really 
The carpet from under me and the reality as I knew it 
Not the same walls 
Not the same country 
Not the same company 
Just all new and different 
Can’t go back 
Can’t get back there 
No way back
No way back whatever I tell myself
No new normal
No “normal” at all 

It was caught early they said 
It would be over in six months they said 
Biggest lie 
Biggest scam 
Biggest challenge 
Not just with the medication or the side effects or the loss of my body parts, or hair, or dignity, or relationship, or realising the truth about my friends and family, 
and who is REALLY there but also to keep going 
To carry on carrying on because I had dreams 
I had plans 
I had ideas for my life 

What would you say to me now 
Now you know 
The reality of my heart and mind 
As I struggle to drag my beaten soul from my bed in the morning 
As I walk with tired painful limbs 
Bruised and broken from IV drips and blood tests and my weight going up and down 
Appetite is just done 
Eyes are sore and sting
From the daylight and the online research
Keeps me up at night, my personal insomnia 
All that scrolling through the reality I am faced with 
That group I joined 
That group I am a member of 
The life time membership 

But I’m not done 
I’m not bailing 
I have been loyal since my day dot and I don’t intend on changing that 
Yes my personality has changed somewhat maybe and my humour got darker and my eyes look heavy and my body is slower 
But I’m still here 
Still expecting the sun to shine down on me 
Even through the storms 
Even through the floods
Even through the fear and the pain 

Don’t ever underestimate me 
Or my ability 
I rose from the depths 
I rose from the fatigue
I rose from the ashes

Friday, 17 January 2025

Passing time

I could never ever really tell you the truth 
Not really 
I wanted to but my needs were far below yours 
Hidden under piles of rows and gaslit evenings where I started to lose my reflection 
I would sit in my room and think tonight I will say it but the moment would only roll on by me 
Like the time passing so slowly
I could never grab it and it was always a moment gone 

We met at a time I was becoming 
I was becoming me and it was scary
My past links were present and my confidence had grown 
My clothes were my choice as was my music 
My flat was rented but it was all me 
All mine and all as I had wished and dreamt it to be 
The one before had no front door so this was steps above 

Find the stump
Find the root cause of all this insomnia and pain 
Waking from drained feeling and emotion to start the new day
Emotionally exhausted before I ever start
All you 
All us 
Some true and some not 
Patching over the cracks we had made over and over
Not really sure why 
No regrets just time gone by 
No replay 
No way back 
You can’t change anything 

What’s funny is when I’ve sat in the feeling and searched for the meaning 
I have been met with reality 
Never been on a pedastal for anyone 
Never been someone’s obsession 
Never felt that special 
I half believed it once but I was mistaken 
When given time to really show it they were gone so fast 
The door didn’t even shut 

It’s my way 
It’s how i do life 

But now the blurred image in the mirror is getting easier to see
I see my deep look in those eyes and finally see me 
I want to do life my way and live life properly
I want to meet people who compliment me 
Who mean what they do and mean what they say
I want to have conversations that flow without being on a timer
I want to offload my day without fear of being ignored
I want someone to see my ASD as endearing and ok 
I want to be free to be me and for them to be there as part of my army
The army there to protect and let no one harm me 
To be my cheerleader when I lack confidence
Or to pick me up when I fall 

To know I have been through hell these passed 4 years but it will not be wasted
The lessons will forever be sketched into my memory
I am not looking for complete as I already have that 
I am hoping for friendship loyalty and love
That house on that street 
My own place 
Decorated for me by me
Persistence and resilience are traits I didn’t ever imagine 
But they’ve been my silent companion all this time 


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